“My Butterfly Girl” is the powerful true story of Alex Hood, a beautiful little girl born with Epidermolysis Bullosa (EB) — a rare genetic skin condition so painful, it’s often called “the worst disease you’ve never heard of.”

Alex’s short life was full of daily battles — every touch, movement, and moment came with pain. But she faced it all with unimaginable courage, love, and a radiant spirit that touched everyone she met.