My Butterfly Girl

The tale of a life born with a cruel inherited condition known as EB as told by her Father Robin Hood.

by Robin Hood

My Butterfly Girl

About the Book

“My Butterfly Girl” is the true story of Alex Hood, a young girl who suffered from Epidermolysis Bullosa (EB), a rare and agonising skin condition. Her short life was filled with pain, but also with courage, love, and the fight by her Father Robin Hood to raise the money needed to find a cure for this wicked condition.

Robin dedicated his life to raising awareness and funds for a cure. His journey took him from hospital corridors to the offices of the rich and powerful — showing how pain can give birth to purpose.

Click here to watch the DebRA Short Film.

Click here to watch the start of their Journey.

Meet Robin Hood

A father. A campaigner. A storyteller.

Robin Hood’s story is as powerful as his daughter’s. Through personal loss, he became a voice for countless children suffering from EB. His persistence helped raise millions for research and opened doors few believed could be possible.

" I encourage you to keep up the good work DEBRA is doing. Your efforts are an inspiration and I know that Alex would be proud. I wish you all the best."

Bill Clinton

former president

" You have done so much over the years to raise funds for EB research and have my deepest admiration for your efforts. You were Alex’s greatest champion and I am sure she was very proud of your great love for her. With all my best wishes. "

Gordon Brown

Former Prime Ministe

" To describe Robin as a tireless campaigner for the DEBRA charity completely understates his contribution. His efforts and dedication to the cause has been nothing short of phenomenal."

Simon Mackenzie-Smith

former memeber of DEBRA appeals council.

Diana

goodreads

Ready to be moved, inspired, and awakened?

My Butterfly Girl is more than a memoir — it’s a call to believe in the impossible.